As many who know Alex will know by now, he will be receiving Community Participation funding next year and has successfully registered with an agency which will oversee the self-managed model (see 'Alex's LifeBiz' post below).
People who will receive support through the Community Participation Program qualify for a particular funding level, whichever kind of service they'll seek. Then they choose a provider and register.
The way this 'self-managed' model will work for Alex is that an agency will support us (his family) to map out a 'plan' of what Alex would like to do, what will offer him the best opportunities and what will help him meet people and develop his skills. Whatever we think will benefit Alex can go into that plan. Then we can advertise for a team of support people for him to help him pursue those things. We can interview and select people suitable to work with Alex but they are directly employed by the agency, with all the usual award protections and conditions. The support team positions are permanent part-time ones.
In practice, this means that if we want to try to find a young support worker to take Alex to dinner with friends at a pub or listen to music on a Saturday night, we can do that. If we want someone with some artistic background to help him with his art cards, we can look for such a person. Some people might work in pairs to support him with swimming etc and some may work substantial hours. Others may only work an hour a week. That's the kind of flexibility we can offer, because everything is tailored to what Alex wants to do.
Wednesday, December 3, 2008
Wednesday, November 19, 2008
Graduation
Alex attended his school's Graduation Celebration last night. It was lovely to hear the applause when he was presented 'on the red carpet'. As their gift to their Year Adviser, Year 12 donated money to Tear Australia to fund assistance to people with disability in Afghanistan, Laos, Nepal or Thailand.
Monday, November 3, 2008
Pub Trivia
Alex has discovered the enjoyment of regular attendance at pub trivia nights. He loves catching up with friends and enjoying
the social occasion.
Saturday, September 20, 2008
Final week of school
Alex's time at school is coming to an end. It's a long time ago that this little cutie first started out in kindergarten:School has been a pretty happy experience for Alex.
There have been surprisingly few obstacles to overcome in making sure he was able to enjoy a pretty typical experience. Having been in ordinary classes since beginning school has given Alex a very rich experience of school that would not have been possible for him in the usual educational settings created specifically for people with disabilities. He's got to know a huge range of kids in his different classes. He's learned so much language and so many concepts from working in groups and pairs with other kids. He's been to excursions, to birthday parties, concerts, you name it.
Now we come to the last week of Year 12 school classes.
These photos are from the Year 12 & Staff dinner and the end of year concert:
Next term Alex will receive some ongoing support from school to start his post-school life in the community.
Sunday, August 31, 2008
Alex the artist
Did you know Alex was an artist?
He's been very busy producing stamped art works with support and with encouragement from his art teacher at school. We've been busily gluing the stamps onto cards (see photos).
He's already made his first $150 selling the cards, so I guess that officially makes him a working artist.
If you're interested in finding out more about the cards, leave a comment or send an email to stroevey@y7mail.com
He's been very busy producing stamped art works with support and with encouragement from his art teacher at school. We've been busily gluing the stamps onto cards (see photos).
He's already made his first $150 selling the cards, so I guess that officially makes him a working artist.
If you're interested in finding out more about the cards, leave a comment or send an email to stroevey@y7mail.com
Friday, August 22, 2008
About my LifeBiz
This blog is being written on Alex's behalf by the people who love him.
Alex has multiple disabilities, but we see no reason why that should prevent him from having a fantastic life, full of exciting experiences and fulfilling relationships.
"LifeBiz", then, is the name we're giving to the 'business' of making sure Alex has a great life.
It's a 'business' in the sense that a great life for Alex won't happen by accident. It will need deliberate, carefully directed effort, because of the level of his disability and barriers in the way of people with disability enjoying the same kinds of things to which others without disability aspire.
LifeBiz is intended to mean lots of things.
It's an informal, changing network of people who have an interest in Alex's life.
It's a constantly evolving set of ideas about how to achieved valued roles and valued life outcomes for Alex.
We're hoping it will even be from time to time, a range of actual work or skill-based activities that assist Alex to live a life beyond the disability-specific options usually on offer for people with disabilities.
It will hopefully also take help us explore as yet unimagined new exciting opportunities for Alex.
Alex finishes school soon and, people with his level of disability usually go on to receive some funding support through the Community Participation Program, run by the Department of Ageing, Disability and Home Care (DADHC). We'll be hearing soon what funding level they think he's entitled to.
The vast majority of people, upon receiving their funding, register with a disability-specific day service or 'program', in many places because that's the only option available to them. They can effectively disappear from 'real life' and their actual community participation may be minimal. Most service provision is based on groups of people with disabilities engaging in activities not necessarily of their individual choice in the community but not necessarily really with community members and often in the ways/places the activities would typically occur.
We do not believe that option would not allow us to pursue the life we want for Alex.
DADHC is currently running a 'demonstration project' they're calling a 'self-managed' option. It's based on a family governance model, which would allow us much more flexibility and choice. We will hopefully be able to help Alex do the things he'd choose for himself, have him experience 'real life' and participate in a real and valued way in his community... all the things Alex's 'LifeBiz' has as its goals.
We invite readers of Alex's blog to share with us in this endeavour of imagining and realising wonderful things for this wonderful young man.
Alex has multiple disabilities, but we see no reason why that should prevent him from having a fantastic life, full of exciting experiences and fulfilling relationships.
"LifeBiz", then, is the name we're giving to the 'business' of making sure Alex has a great life.
It's a 'business' in the sense that a great life for Alex won't happen by accident. It will need deliberate, carefully directed effort, because of the level of his disability and barriers in the way of people with disability enjoying the same kinds of things to which others without disability aspire.
LifeBiz is intended to mean lots of things.
It's an informal, changing network of people who have an interest in Alex's life.
It's a constantly evolving set of ideas about how to achieved valued roles and valued life outcomes for Alex.
We're hoping it will even be from time to time, a range of actual work or skill-based activities that assist Alex to live a life beyond the disability-specific options usually on offer for people with disabilities.
It will hopefully also take help us explore as yet unimagined new exciting opportunities for Alex.
Alex finishes school soon and, people with his level of disability usually go on to receive some funding support through the Community Participation Program, run by the Department of Ageing, Disability and Home Care (DADHC). We'll be hearing soon what funding level they think he's entitled to.
The vast majority of people, upon receiving their funding, register with a disability-specific day service or 'program', in many places because that's the only option available to them. They can effectively disappear from 'real life' and their actual community participation may be minimal. Most service provision is based on groups of people with disabilities engaging in activities not necessarily of their individual choice in the community but not necessarily really with community members and often in the ways/places the activities would typically occur.
We do not believe that option would not allow us to pursue the life we want for Alex.
DADHC is currently running a 'demonstration project' they're calling a 'self-managed' option. It's based on a family governance model, which would allow us much more flexibility and choice. We will hopefully be able to help Alex do the things he'd choose for himself, have him experience 'real life' and participate in a real and valued way in his community... all the things Alex's 'LifeBiz' has as its goals.
We invite readers of Alex's blog to share with us in this endeavour of imagining and realising wonderful things for this wonderful young man.
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